National Organization for Rare Disorders
Address:55 Kenosia Avenue Danbury CT 06813-1968
Telephone(s):(203) 744-0100 (800) 999-6673
World Wide Web: http://www.rarediseases.org
NORD is an information clearing house for rare disorders. It helps provide information for those with rare "orphan" diseases and provides resources for rare disorder organizations. Other programs include giving referrals, offering research grants, advocacy, and medical assistance programs.
Mon.-Fri., 9:00 a.m.-5:00 p.m.
Fees/Methods of Payment:Free for some services; Individual memberships are $30.
Services Offered:Health Care Referrals
, Health Education
, Workshops / Symposiums
Target Groups(By Need):Disabilities, People with