Links

General Information

• Caring for a Seriously Ill or Chronically Ill Child

  Doctor and hospital visits, tests, surgery, insurance paperwork, money isuues, and medicines...KidsHealth takes some of the confusion out of the process.

• Family Village

  A global community of disability-related resources.

• Federation for Children with Special Needs

  The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families.

• Finding a Camp for Your Child with Special Needs

  What child wouldn't benefit from the fun and structured freedom camps provide? Children with special needs certainly aren't an exception.

• Internet Resources for Special Children

  A comprehensive directory to information, organizations and services.

• KidNeeds.com

  This worldwide resource provides children with special needs, families and other caregivers access to comprehensive information and resources.

• National Institute of Mental Health

  Use the Health Information Quick Links for a wealth of useful facts and advice.

• Our-Kids

  An online support group by parents for parents.

• Queens Library Social Story

  This Queens Library Tool Kit is a basic introduction to what the library offers as well as what to expect when visiting. Additionally we have available an intermediate version and an advanced version.

• The Alliance for Technology Access

  This network of community-based Resource Centers, Developers, Vendors and Associates provides information and support services to children and adults with disabilities and their use of standard, assistive and information technologies.

• The Boulevard

  A directory of links to online products and retailers that serve the physically challenged.

• The National Dissemination Center for Children with Disabilities

  Contains information about specific disabilities, early intervention services, special education and related services for school-age children; resources and connections in every state; disability and professional organizations; education rights, and more.

• Vocational and Educational Services for Individuals with Disabilities

  A wealth of information to meet the needs of young people who have physical, mental, or emotional disabilities. Helps families obtain services.

Local Information

• Getting Help: Early Intervention in New York State

  The Early Intervention Program is a statewide program that provides assistance and support to infants and toddlers with disabilities and their families.

• Resources for Children with Special Needs

  This independent, not-for-profit organization provides information and referral, case management and support, advocacy, training, and library and information services to New York City parents and caregivers and to the professionals who work with them.

Support Sites for Individuals and Families

• American Speech-Language-Hearing Association

  This site provides the public, professionals, and students with a gateway to information about communication sciences and communication disorders.

• AsthmaMoms

  This site provides information and tools that help parents and caregivers manage a child's asthma.

• Birth Defect Research for Children

  Information and services for parents of children with birth defects. Offers a "parent matching" program that brings parents together and comprehensive fact sheets.

• Born to Explore! The Other Side of ADD/ADHD

  This advocacy website defines ADD, details various causes for the condition and provides suggestions for alternative treatment.

• CHADD: Children and Adults with Attention-Deficit/Hyperactivity Disorder

  Through collaborative leadership, advocacy, research, education and support, CHADD provides science-based, evidence-based information about ADHD to parents, educators, professionals, the media and the general public.

• Children with Spina Bifida

  A resource page for parents that includes organizations, articles, links, discussion groups, plus information about related diagnoses, learning issues, family support, tests, surgeries, treatments, and more.

• Cleft Palate Foundation

  Advice and information for families and health professionals includes general information, glossary, health care assistance, links, news and fact sheets.

• CureSearch

  Support site for parents and families of kids who have cancer.

• Cystic Fibrosis Resource Center

  Contains a "comprehensive guide to causes, symptoms, approaches to treatment, and ongoing research into this disease." It also has a directory of links to organizations, support groups, chat rooms, and current research.

• Epilepsy

  Designed especially for newly diagnosed epilepsy patients and families and those patients struggling with treatment, this site also organizes information for specific patient groups: kids, teens, women, families, and seniors.

• Hydrocephalus Association

  This site's mission is to provide support, education and advocacy for individuals, families and professionals.

• Juvenile Diabetes Research Foundation International

  Latest research, daily life with diabetes, and more.

• Kids Health for Parents - Childhood Cancer

  An article with introductory information and lists of related articles and additional resources for parents and caregivers.

• LD Online: Learning Disabilities Information and Resources

  An interactive guide to learning disabilities for parents, teachers and other professionals.

• Learning Disabilities Association of America

  Includes information for adults, parents and teachers on signs, symptoms, education and treatment of LD, a calendar of related conferences and events, and a listing of available resources.

• March of Dimes

  This is the website of an organization whose mission is to improve the health of babies by preventing birth defects and infant mortality. click on nacersano.org at the bottom of the homepage to see the site in Spanish.

• Muscular Dystrophy Association

  Definitive source for news and information about 40 neuromuscular diseases, MDA research, and services for adults and children with neuromuscular diseases and their families.

• National Organization for Rare Disorders

  A comprehensive site containing an index of rare disorders and databases containing articles, research, drug options and links to support groups. This site also has a medical-assistance program and recent news about rare disorders.

• National Organization on Fetal Alcohol Syndrome

  Information from an organization dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and improving the quality of life of affected individuals and families.

• O.A.S.I.S.: Online Asperger Syndrome Information and Support

  Information and links about Asperger Syndrome for patients, educators, professionals, and those who have the syndrome.

• Great Schools.org

  Includes sections on identifying kids with learning differences, managing learning differences, and connecting with other parents.

• Seedlings: Braille Books for Children

  Links to programs that provide free encyclopedia articles in Braille and Braille books to families who have visually-impaired children.

• Shykids.com

  The purpose of this website is to talk about shyness, what it feels like, what it looks like and most importantly, how to feel more comfortable with who you are and who you are with. The site includes books, a newsletter, links and articles for kids and their parents.

• The International Dyslexia Association

  Information about dyslexia and related learning disabilities, including common signs of dyslexia and Frequently Asked Questions.

• National Tourette Syndrome Association

  This official association website covers diagnosis, treatment, advocacy, and a host of other useful information for those affected by Tourette syndrome.

• United Cerebral Palsy

  A leading source of information on cerebral palsy is also a pivotal advocate for the rights of persons with any disability.